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This site is not only dedicated to a brother and son but to all the people
who have had similar experiences with the unlawful denial by the NHS for
Continuing Health Care. This care is being unlawfully denied to the people
who are fully entitled under the National health Service Act 1946/48 and the
precedent set by the Court of Appeal in the Coughlan Judgement in 1999.
Stephen Johnson
Why do you Care
I feel there should be more scope when it comes to the benefit system. My son is now 23 so does not qualify for any help with transport costs anywhere, His IB is such that he does not qualify for Income Support. Although he needs constant supervision when he is out he only gets the lower rate of DLA as he is 'mobile' and I have been advised by the care manager that he would not qualify for a higher rate. I have to take him everywhere so that he can access appropriate day placements, in order to lead a fulfilling and satisfying life. I can spend £30 - £40 a week on fuel. I get my CA but cannot even consider a part time job due to the erratic and fluid nature of the day care. If he were in residential care they would be getting hundreds of pounds a week just to take care of him. He seems to fall into a middle bracket where he is fit and active and mobile but cannot be left alone. I wish there was some middle ground for financial help towards his 'expenses' - we pay extra because we love him and want him to have a good life but it does seem a little unfair. Angela
We are not able to afford respite care. Penny
There is no one to care for us when the carer becomes ill. Ann